Where we are

Okay we are back and ready to crash. It has been a long day and things are okay. We did not get the results we were hoping for today but we did get some results. So here is the day in a nut shell.

Brayson is working really hard to breath. We want this to get better. Each time we see a doctor they have a different reason as to why he is having all the difficulty (frankly at this point I don't really care why - I just want it fixed!) which is good and bad. The end result is that there is an issue and the issue needs to be fixed. They are working on making things better by trying everything they can think of to avoid surgery. I am thankful that they are looking out for Brayson by not doing surgery but at the same time it is so hard to watch him struggle when you know that there is something (no experimental) that can be done now. So we are on yet another medicine to see if it will work. This time we will try for one week and go back to see the doctor again next week. Brayson has been such a trooper and I know this kid is a fighter just by the way he has had to live so far.

I am thankful for the doctors that know what they are doing and for ultimately looking out for the best interest in Brayson although my attitude did not reflect that at a couple of points today when I just wanted them to fix him so he could be at ease. I am thankful for modern medicine that allows my child some comfort along the way so that he can be healed. I am thankful for a God I can lay my burdens down in front of and know that I am heard, loved, and taken care of.

Thanks and again for all the prayers and calls of concern. We will continue to take this one day at a time and hope the medicine this week works. We pray for relief for Brayson and ease for his breathing. We say a prayer of thanks for family and friends who petition God on our behalf. Thanks ya'll